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Unmet healthcare needs and barriers to care among individual with disabilities registered with Disability Council of Dongola locality northern state Sudan 2026

ETH-20261030-0283 تاريخ التقديم: Oct 30, 2026 / Submitted: Oct 30, 2026
قيمة الرسوم / Payment Amount
0.00 SDG
نوع البحث / Research Type
بكالوريوس / Bachelor's
فترة الدراسة / Study Period
Nov 16, 2026 - Dec 05, 2026
Approved
السودان - الولاية الشمالية
وزارة الصحة
الادارة العامة للتخطيط والتنمية الصحية
إدارة البحوث
لجنة الموافقة الأخلاقية
طلب الموافقة الأخلاقية - Ethical Approval Request Form
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Ethical Approval Request Form
General Administration for Planning and Health Development
Research Department
Ethical Approval Committee
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رقم التسلسل
Serial Number
SER-20261030-0283
رقم الطلب
Request Number
ETH-20261030-0283
تاريخ تقديم الطلب
Date of Submission
2026-10-30

القسم الأول: معلومات الباحث / Principal Investigator Information

1. الاسم الكامل للباحث الرئيسي
Principal Investigator Full Name
ElSayda Gerieballa Ahmed Hassan
2. الجهة التي ينتمي إليها
Affiliation Type
جامعة / University: Dongola - College of Medicine
Dongola - College of Medicine
3. الوظيفة / اللقب العلمي
Job Title/Academic Degree
-
4. البريد الإلكتروني
Email Address
saydagerieballa@gmail.com
5. رقم الهاتف
Phone Number
+249 96 184 0810
المشرف / Supervisor
الاسم الكامل / Full Name
Mustafa salimeen abdalkreem salimeen
البريد الإلكتروني / Email
mustafasalimeen631@gmail.com
الوظيفة / اللقب العلمي / Job Title
Academic title /Assistant professor /department of Anatomy and radiology
رقم الهاتف / Phone
0124253344
القسم / المؤسسة / Department
University of Dongola

القسم الثاني: تفاصيل الدراسة البحثية / Research Study Details

7. عنوان الدراسة
Study Title
Unmet healthcare needs and barriers to care among individual with disabilities registered with Disability Council of Dongola locality northern state Sudan 2026
8. نوع البحث (يرجى التحديد)
Type of Research (Please select)
☐دكتوراه / PhD
☐ماجستير / Master's
☑بكالوريوس / Bachelor's
☐دبلوم عالي / Postgraduate Diploma
☐دبلوم وسيط / Intermediate Diploma
☐ورقة علمية / Research Paper
☐تقرير علمي / Scientific Report
☐أبحاث طبية / Medical Research
☐أخرى / Other
9. وصف مختصر للبحث
Brief Description of Research
Brief Description of Study: This descriptive cross-sectional study aims to assess unmet healthcare needs and barriers to care among individuals with disabilities in Dongola Localty, Northern State, Sudan, in 2026. Utilizing the Northern State Disability Council’s official registry as a sampling frame, a target sample of 216 registered individuals will be selected. Data will be collected using a structured, interviewer-administered questionnaire covering sociodemographic characteristics, disability types via the Washington Group Short Set, healthcare-seeking behaviors, and specific financial, geographic, and institutional barriers. The findings will provide essential evidence to support inclusive health planning and advocacy in the region.

القسم الثالث: الجوانب الأخلاقية / Ethical Considerations

10. طريقة الحصول على الموافقة من المشاركين
Method of Obtaining Consent from Participants
☐مكتوبة / Written
☑شفهية / Verbal
☐غير مطبقة / Not Applicable
☐ضمنية / Implied
☐إعفاء / Waiver
يرجى إرفاق نموذج الموافقة / Please attach consent form
11. آلية الحفاظ على سرية المعلومات
Confidentiality Measures
Confidentiality Protection Measures: - Anonymity: All personal identifiers (such as names and specific contact details) will be removed from the questionnaires, and each participant will be assigned a unique identification code for data entry and analysis. - Secure Storage: Completed questionnaires and digital data files will be kept in password-protected digital storage and locked physical files accessible exclusively to the authorized research team. - Informed Consent: Participants will be fully informed about the study's purpose, confidentiality safeguards, and their voluntary right to withdraw at any stage without affecting their rights or services from the Council. - Data Reporting: Results will be reported strictly in aggregate forms or generalized statistical summaries, ensuring that no individual participant can be identified in any publication or report. -
12. مدى المخاطر على المشاركين
Risk Level to Participants
☐لا توجد / None
☑طفيفة / Minor
☐متوسطة / Moderate
☐عالية / High
يرجى توضيح أي مخاطر محتملة وخطة التعامل معها / Please describe any potential risks and mitigation:
Potential Risks to Participants: - Psychological or Emotional Distress: Some participants may experience mild fatigue, inconvenience, or emotional discomfort when discussing barriers to healthcare, discrimination, or challenges related to their disability. - Privacy and Confidentiality Risks: Although strict security measures are implemented, there is a minimal risk of accidental disclosure of personal or health information. - Time Burden: Answering the structured interviewer-administered questionnaire will require approximately 15 to 20 minutes of the participant's or proxy's time, which may cause minor disruption to their daily routine.
13. الفوائد المحتملة للمشاركين أو المجتمع
Potential Benefits to Participants or Society
Potential Benefits: - Direct Benefits: Participants may not receive immediate direct material benefits, but the study provides them with a platform to voice their challenges, unmet healthcare needs, and experiences regarding healthcare access. - Indirect and Societal Benefits: The findings will provide health authorities in Northern State and the National Council for Persons with Disabilities with updated, evidence-based data. This information is essential for improving inclusive health planning, addressing documented barriers (financial, geographic, and institutional), and advocating for better healthcare services and policies tailored to individuals with disabilities.
14. هل تشمل الدراسة فئات ضعيفة؟
Does the study involve vulnerable groups?
☐الأطفال / Children
☐النساء الحوامل / Pregnant Women
☐اللاجئون/النازحون / Refugees/Displaced
☐ذوو الإعاقة / People with Disabilities
☐أخرى / Other:

القسم الرابع: قائمة المرفقات المطلوبة / Required Attachments

نسخة من المقترح البحثي الكامل
Full Research Proposal
أدوات جمع البيانات
Data Collection Tools
خطاب تسهيل من الجامعة
University Facilitation Letter

القسم الخامس: الإقرار والتوقيع / Acknowledgment and Signature

أُقر أنا الموقع أدناه بأن جميع المعلومات الواردة في هذه الاستمارة صحيحة وكاملة، وأتعهد بعدم البدء في أي جزء من الدراسة قبل الحصول على الموافقة الأخلاقية الرسمية، والالتزام بجميع الإرشادات والمعايير الأخلاقية المعتمدة من قبل لجنة الموافقة الأخلاقية.
I, the undersigned, acknowledge that all information provided in this form is accurate and complete, and I agree not to begin any part of the study before receiving official ethical approval, and to comply with all ethical guidelines and standards approved by the Ethical Approval Committee.
اسم الباحث الرئيسي / Principal Investigator Name
ElSayda Gerieballa Ahmed Hassan
التوقيع / Signature
_______________________
التاريخ / Date
2026-10-30

معلومات الباحث / Researcher Information

E

ElSayda Gerieballa Ahmed Hassan

saydagerieballa@gmail.com

+249 96 184 0810

جامعة: Dongola الكلية: College of Medicine
M

Murma Mohammed Saad Abd Albakheet

www.Wiza391511@gamil.com

0906064383

جامعة: Dongola الكلية: College of medicine

Disability concil

اسم المؤسسة التي سيتم فيها عمل البحث / Name of the institution where the research will be conducted

Dongla

معلومات الدراسة / Study Information

بكالوريوس / Bachelor's

بكالوريوس - Bachelor

0.00 SDG

Brief Description of Study: This descriptive cross-sectional study aims to assess unmet healthcare needs and barriers to care among individuals with disabilities in Dongola Localty, Northern State, Sudan, in 2026. Utilizing the Northern State Disability Council’s official registry as a sampling frame, a target sample of 216 registered individuals will be selected. Data will be collected using a structured, interviewer-administered questionnaire covering sociodemographic characteristics, disability types via the Washington Group Short Set, healthcare-seeking behaviors, and specific financial, geographic, and institutional barriers. The findings will provide essential evidence to support inclusive health planning and advocacy in the region.

Nov 16, 2026 - Dec 05, 2026

Oct 31, 2026 - Jan 05, 2027

الاعتبارات الأخلاقية / Ethical Considerations

Verbal

مخاطر منخفضة - Low Risk

Confidentiality Protection Measures: - Anonymity: All personal identifiers (such as names and specific contact details) will be removed from the questionnaires, and each participant will be assigned a unique identification code for data entry and analysis. - Secure Storage: Completed questionnaires and digital data files will be kept in password-protected digital storage and locked physical files accessible exclusively to the authorized research team. - Informed Consent: Participants will be fully informed about the study's purpose, confidentiality safeguards, and their voluntary right to withdraw at any stage without affecting their rights or services from the Council. - Data Reporting: Results will be reported strictly in aggregate forms or generalized statistical summaries, ensuring that no individual participant can be identified in any publication or report. -

Potential Risks to Participants: - Psychological or Emotional Distress: Some participants may experience mild fatigue, inconvenience, or emotional discomfort when discussing barriers to healthcare, discrimination, or challenges related to their disability. - Privacy and Confidentiality Risks: Although strict security measures are implemented, there is a minimal risk of accidental disclosure of personal or health information. - Time Burden: Answering the structured interviewer-administered questionnaire will require approximately 15 to 20 minutes of the participant's or proxy's time, which may cause minor disruption to their daily routine.

Potential Benefits: - Direct Benefits: Participants may not receive immediate direct material benefits, but the study provides them with a platform to voice their challenges, unmet healthcare needs, and experiences regarding healthcare access. - Indirect and Societal Benefits: The findings will provide health authorities in Northern State and the National Council for Persons with Disabilities with updated, evidence-based data. This information is essential for improving inclusive health planning, addressing documented barriers (financial, geographic, and institutional), and advocating for better healthcare services and policies tailored to individuals with disabilities.